Parents’ Experiences Navigating Intervention Systems for Young Children With Mild Language Delays

Author:

Marshall Jennifer1,Adelman Andrea2,Kesten Stacey M.2,Natale Ruby A.23,Elbaum Batya2

Affiliation:

1. University of South Florida, Tampa, USA

2. University of Miami, Coral Gables, FL, USA

3. Mailman Center for Child Development, Miami, FL, USA

Abstract

The purpose of this study was to explore the experiences of parents of children with mild language delays who were referred to an Individuals With Disabilities Education Act (IDEA) birth-to-3 or preschool program, were determined not eligible for services, and were referred on to a community-based program for short-term speech-language therapy. Interviews were conducted in the parents’ preferred language (10 Spanish, 10 English). A grounded theory approach was applied to identify emergent themes. Results indicated that the process of recognizing a developmental delay, receiving assessment results, and enrolling in services presents challenges that require parents to demonstrate engagement and advocacy throughout. This study highlights parents’ motivations for seeking out early intervention services and underscores the importance of understanding parents’ experiences navigating developmental service systems. Program planners can partner with parents to address barriers and also capitalize on successes to facilitate timely response to developmental concerns, appropriate referrals, and effective interventions.

Publisher

SAGE Publications

Subject

Psychiatry and Mental health,Developmental and Educational Psychology,Pediatrics, Perinatology and Child Health

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