Parental perception of the process of communicating a diagnosis of autism spectrum disorder in the Republic of Croatia

Author:

Jurin Anamarija1,Šimleša Sanja2ORCID,Cepanec Maja2ORCID

Affiliation:

1. Department of Pediatrics, Zadar General Hospital, Zadar, Croatia

2. Child Communication Research Laboratory, Department of Speech and Language Pathology, Faculty of Education and Rehabilitation Sciences, University of Zagreb, Zagreb, Croatia

Abstract

The process of communicating a diagnosis of an autism spectrum disorder (ASD) stands out as the first important factor when confronting parents with such a diagnosis for their child. The situation in which a child is diagnosed with ASD is viewed as certainly one of the most stressful moments for parents. Previous research has indicated several factors that affect the positivity of parents’ experiences. Therefore, the aim of the current study was to examine the experiences of parents in the Republic of Croatia concerning the process of communicating a diagnosis of ASD to them and to show the satisfaction level of parents with the characteristics of this procedure. The study involved 52 parents of children who were either suspected of having or diagnosed with ASD. For the purposes of the research, a questionnaire was constructed. The results showed a relatively high degree of parental satisfaction with the process of communicating a diagnosis of ASD. A significant correlation was found between parental satisfaction and the presence of positive characteristics in both the diagnostic process and communicating the diagnosis. However, the results also indicated that there is much room for improvement regarding the conditions and manner of expressing this unwanted news.

Publisher

SAGE Publications

Subject

Psychiatry and Mental health,Clinical Psychology,General Medicine,Pediatrics, Perinatology and Child Health

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