Characteristics of Hospice and Palliative Care Programs in US Prisons: An Update and 5-Year Reflection

Author:

Prost Stephanie Grace1ORCID,Holland Margaret M.2,Hoffmann Heath C.3,Dickinson George E.3

Affiliation:

1. Raymond A. Kent School of Social Work, University of Louisville, Louisville, KY, USA

2. College of Social Work, Florida State University, Tallahassee, FL, USA

3. Department of Sociology and Anthropology, College of Charleston, Charleston, SC, USA

Abstract

Individuals with terminal illness are dying behind bars and many state prison administrators have incorporated on-site hospice and palliative care services. Little is known, however, about these programs since a 2010 study of prison hospice characteristics. We provide an updated description and reflection of current hospice and palliative care programs in state prisons serving incarcerated persons with terminal illness. A cross-sectional survey was sent to representatives of all known prisons offering hospice and palliative care programs and services (N = 113). Questions were drawn from an earlier iteration regarding interdisciplinary team (IDT) membership, training length and topics, peer caregivers, visitation policies, bereavement services, perceived stakeholder support, and pain management strategies. Additional questions were added such as estimated operational costs, peer caregiver input in patient care, and the strengths and weaknesses of such programs. Frequency distributions were calculated for all study variables. Responding representatives (n = 33) indicated IDTs remain integral to care, peer caregivers continue to support dying patients, and perceived public support for these programs remains low. Reduced enthusiasm for the programs may negatively influence administrative decision-making and program resources. Further, peer caregiver roles appear to be changing with caregivers charged with fewer of the identified tasks, compared with the 2010 study.

Funder

Florida State University

Publisher

SAGE Publications

Subject

General Medicine

Reference25 articles.

1. Prost SG, Golder S, Archuleta A. Co-and multimorbidity among older adults in a state prison system: Prevalence across age cohorts. In-press. Manuscript submitted for publication. Aging and Mental Health.

2. Aging With Mental Disorders in the Criminal Justice System: A Content Analysis of the Empirical Literature

3. Prost SG, Williams BA, Archuleta A, Golder S. Older adults incarcerated in state prison: health and quality of life disparities between age cohorts. Manuscript in preparation.

4. Ageing and dying in the contemporary neoliberal prison system: Exploring the ‘double burden’ for older prisoners

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