How do people in prison access palliative care? A scoping review of models of palliative care delivery for people in prison in high-income countries-Reference-Cited by-同舟云学术

How do people in prison access palliative care? A scoping review of models of palliative care delivery for people in prison in high-income countries

Published:2024-04-16 Issue:5 Volume:38 Page:517-534
ISSN:0269-2163
Container-title:Palliative Medicine
language:en
Short-container-title:Palliat Med

Author:

Gilbert Emma¹^ORCID,Viggiani Nick De²^ORCID,de Sousa Martins Joana¹,Palit Tanuka³^ORCID,Sears Jessica⁴,Knights Daniel⁵,Roulston Audrey⁶^ORCID,Turner Mary⁷,Selman Lucy E¹^ORCID

Affiliation:

1. Palliative and End of Life Care Research Group, Bristol Medical School, University of Bristol, Bristol UK

2. School of Health and Social Wellbeing, Unversity of the West of England, UK

3. Academic Clinical Fellow Centre of Academic Primary Care, Bristol Medical School, University of Bristol, UK

4. King’s College London, London, UK

5. University of Cambridge, Cambridge, UK

6. Professor of Social Work in Palliative Care, School of Social Sciences, Education and Social Work Queen’s University, Belfast, UK

7. Reader in Health Services Research, University of Huddersfield, Huddersfield, UK

Abstract

Background: An ageing prison population with complex health needs combined with punitive sentencing practices means palliative care for incarcerated individuals is increasingly important. However, there is limited evidence regarding the models of care delivery in high-income countries, and their associated challenges and benefits. Aim: To develop a typology of models of palliative care provision for incarcerated individuals, synthesise evidence of their outcomes and describe facilitators of and challenges in delivering different models of palliative and end-of-life care in prisons. Design: Scoping review following Arksey and O’Malley, with narrative synthesis. The protocol was registered prospectively (reviewregistry1260). Data sources: MEDLINE, EMBASE, CINAHL, PsycINFO, the Social Sciences Citation Index and grey literature were searched on 15th March 2023. The Mixed Methods Appraisal Tool (MMAT) was used for quality appraisal. Results: A total of 16,865 records were screened; 22 peer-reviewed articles and 18 grey literature sources met the inclusion criteria. Three models were identified: Embedded Hospice, Outsourcing Care and Community Collaboration. The Embedded Hospice model shows potential benefits for patients and prisons. Outsourcing Care may miss opportunities for comprehensive care. Collaborative Care relies on proactive prison-community relationships that could be formalised for improvement. Psychosocial and bereavement needs of those dying in prison and their caregivers lack sufficient documentation. Conclusion: Further research is needed to evaluate prison hospice costs and examine how prison hospices impact compassionate release usage. Beyond the USA, policies might formalise care pathways and recognise best practices. Further investigation to address psychosocial needs of people in prison with life-limiting illnesses and post-death bereavement support is required.

Funder

Health Services Research Programme

Publisher

SAGE Publications

Link

https://journals.sagepub.com/doi/pdf/10.1177/02692163241242647

Reference67 articles.

1. Mapping palliative care provision in European prisons: an EAPC Task Force Survey

2. Human Rights and Dignity Behind Bars

3. A systematic literature review exploring the psychosocial aspects of palliative care provision for incarcerated persons: a human rights perspective

4. Palliative care needs and experiences of people in prison: A systematic review and meta-synthesis

5. Palliative and end of life care in prisons: a mixed-methods rapid review of the literature from 2014–2018