Desire to Die: How Does the Patients’ Chorus Sound?

Author:

Kremeike Kerstin1ORCID,Boström Kathleen1ORCID,Preiser Christine23,Dojan Thomas1,Voltz Raymond1456

Affiliation:

1. Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany

2. Faculty of Medicine, Institute of Occupational and Social Medicine and Health Services Research, University Hospital Tuebingen, Tuebingen, Germany

3. Centre for Public Health and Health Services Research, Faculty of Medicine, University Hospital Tuebingen, Tuebingen, Germany

4. Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf (CIO ABCD), Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany

5. Clinical Trials Center (ZKS), Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany

6. Center for Health Services Research, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany

Abstract

Patients receiving palliative care often express a desire to die. Forms and backgrounds of these expressions can be diverse. To contribute to a better understanding of this phenomenon, we analyzed patients’ desire to die expressions reported by palliative care providers participating in 11 communication trainings on desire to die. The 102 participants were asked to reproduce related patients’ statements from their everyday practice. The 165 reported statements could be assigned to the four topics: “Putting an end to life by …,” “Social death,” “Death images,” as well as “Specific and unspecific references to life, death and dying.” Across these topics, phrasing differs particularly regarding sentence type (interrogative, declarative, propositional, exclamatory), explicitness and (the way of) referencing others (e.g. attribution of power). The compilation of statements reflects a chorus of expressions, which the palliative care providers might hear throughout their professional career as well as during a patient’s process(ing) of disease.

Funder

Bundesministerium für Bildung und Forschung

Publisher

SAGE Publications

Subject

Life-span and Life-course Studies,Critical Care and Intensive Care Medicine,Health (social science)

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