Feasibility, acceptability and preliminary effectiveness of a mental health drop-in centre for the siblings of young people attending a paediatric hospital

Author:

Bennett Sophie D12,Rojas Natalia12ORCID,Catanzano Matteo12ORCID,Roach Anna12ORCID,Ching Brian CF12,Coughtrey Anna E12,Heyman Isobel12,Liang Holan12,Project Team Lucy12,Shafran Roz12

Affiliation:

1. UCL Great Ormond Street Institute of Child Health, University College London, London, UK

2. Psychological and Mental Health Services, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK

Abstract

Siblings of children with long-term conditions (LTCs) can have significantly elevated mental health needs, but these are often overlooked. A pragmatic single-arm feasibility pilot assessed feasibility, acceptability and preliminary effectiveness of a drop-in centre in a paediatric hospital addressing mental health needs of patients with LTCs, their carers and siblings. The drop-in centre accepted self-referral and supplemented existing provision offering a suite of interventions, including signposting, diagnostic assessments and/or guided self-help. This paper reports on feasibility, acceptability and preliminary outcomes of this centre for siblings. Eighteen siblings aged 2–17 used the centre. Sixteen of their parents completed the Strengths and Difficulties Questionnaires at baseline and 6 months post-baseline, and ten completed parent-reported PedsQL across two time points. Preliminary effectiveness results demonstrated a decrease in mental health symptoms with large effect size (score reduction of 3.44, 95% CI [1.25, 5.63], d = 0.84) and small effect on quality of life, with scores increasing from a median of 69.91, 95% CI [53.57, 91.67], to a median of 80.44, 95% CI [67.39, 89.13], r = 0.11 for these siblings. 88% of parents were satisfied with this provision for their sibling child. This study highlights the feasibility and value of assessing siblings for emotional and behavioural difficulties and providing them with an accessible, effective and acceptable intervention.

Funder

Beryl Alexander Charity

Great Ormond Street Hospital Charity

Publisher

SAGE Publications

Subject

Pediatrics,Pediatrics, Perinatology and Child Health

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