1. Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Palliative Research Centre, Stockholm, Sweden
2. The Department of Women’s and Children’s Health, Paediatric Oncology and Haematology, Childhood Cancer Research Unit, Karolinska Institute, Karolinska University Hospital, Stockholm, Sweden
3. The Department of Women’s and Children’s Health, Paediatric Neurology, Karolinska Institute, Karolinska University Hospital, Astrid Lindgren Children’s Hospital, Stockholm, Sweden
4. National Rehabilitation Centre for Neuromuscular Diseases (RCFM), Aarhus, Denmark