Perceptions of quality of life by people with advanced cancer who live at home

Abstract

Introduction Cancer in advanced stages often results in a reduced ability to engage in occupations, which may influence quality of life. A growing number of people with advanced cancer receive palliative care at home and thus the home becomes the place where most of their everyday occupations occur. The purpose of this study was to explore, from an occupational perspective, how people with advanced cancer who live at home perceive quality of life. Method A qualitative descriptive design was employed, consisting of two consecutive interviews: a semi-structured interview and a subsequent photo-elicitation interview. Thematic analysis was used to explore the data. Ten participants took part in this study. Findings The analysis identified three interrelated themes: ‘quality of life during changing circumstances’; ‘striving to continue everyday life’ and ‘being independent and connected’. Conclusion The findings highlight the importance of everyday life continuity and ongoing changes and adjustments needed to maintain quality of life. However, due to the progressive nature of advanced cancer, the required adjustments may not always be possible. The findings furthermore show that loss of independence and increased dependence may lead to a new sense of interdependence and closeness with family and friends, which positively influences quality of life.