International consensus on occupational therapy interventions for people with palliative care needs: A European Association for Palliative Care Group Concept Mapping study

Author:

Wæhrens Eva Ejlersen12,Morgan Deidre D3ORCID,la Cour Karen1,Lyons Kathleen Doyle4,Lozano Mario Lozano567,De Carlo Marysia MR Prado8,Rezende Gabriela8,Pilegaard Marc Sampedro910ORCID

Affiliation:

1. User Perspectives and Community-based Interventions, the Research Group for Occupational Science, Department of Public Health, University of Southern Denmark, Odense C, Denmark

2. The ADL Unit, The Parker Institute, Copenhagen University Hospital, Denmark

3. Research Centre for Palliative Care, Death and Dying (RePaDD), Flinders University, Adelaide, SA, Australia

4. The Department of Occupational Therapy, Massachusetts General Hospital Institute of Health Professions, Boston, MA, USA

5. The Department of Physical Therapy, University of Granada, Granada, Andalucía, Spain

6. Instituto de Investigación Biosanitaria ibs, GRANADA, Granada, Andalucía, Spain

7. The Sport and Health Joint University Institute (IMUDS), Granada, Andalucía, Spain

8. Division of Occupational Therapy, Department of Health Sciences, Ribeirão Preto Medical School of the University of São Paulo (FMRP-USP), Ribeirão Preto, São Paulo, Brazil

9. DEFACTUM, Central Denmark Region, Aarhus, Denmark

10. Department of Social Medicine and Rehabilitation, Gødstrup Hospital, Denmark

Abstract

Background: While evidence shows that occupational therapists can play a key role in the care of people with palliative care needs, more knowledge about effective occupational therapy interventions for this group is needed. Aim: To identify, organise and prioritise intervention components considered to be effective within occupational therapy for people with palliative care needs from the perspective of occupational therapy clinicians, managers and researchers. Design: Group Concept Mapping utilising a mixed methods participatory approach. Using a focus prompt, participants brainstormed, sorted, labelled and rated generated statements about effective occupational therapy intervention components. Multidimensional scaling analysis and cluster analysis were conducted. Setting/Participants: Snowball recruitment was used to recruit participants. Participants included occupational therapists worldwide who were able to read and write in English and were working as clinicians, managers and/or researchers with occupational therapy interventions for people with palliative care needs. Results: Seventy-two occupational therapists from 15 countries participated in the study representing Asia ( n = 3, 20%), Europe ( n = 8, 53%), Oceania ( n = 2, 13%) and North America ( n = 2, 13%). A total of 117 statements were identified and organised into five clusters: (1) being client-centred, (2) promoting occupational engagement to optimise quality of life, (3) involving the social and relational environment, (4) enabling occupations and (5) facilitating occupational adaptation. Conclusions: Five clusters of core occupational therapy intervention components were considered to be effective when supporting people with palliative care needs. Research should use this knowledge to inform future occupational therapy interventions for this group of people.

Funder

the Danish Association of Occupational Therapy

Publisher

SAGE Publications

Subject

Anesthesiology and Pain Medicine,General Medicine

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