Renal angiomyolipoma in patients with tuberous sclerosis complex: findings from the TuberOus SClerosis registry to increase disease Awareness

Author:

Kingswood J Chris1,Belousova Elena2,Benedik Mirjana P3,Carter Tom4,Cottin Vincent5,Curatolo Paolo6,Dahlin Maria7,D’ Amato Lisa8,d'Augères Guillaume Beaure9,de Vries Petrus J10,Ferreira José C11,Feucht Martha12,Fladrowski Carla1314,Hertzberg Christoph15,Jozwiak Sergiusz1617,Lawson John A18,Macaya Alfons19,Marques Ruben820,Nabbout Rima21,O’Callaghan Finbar22,Qin Jiong23,Sander Valentin24,Sauter Matthias25,Shah Seema26,Takahashi Yukitoshi27,Touraine Renaud28,Youroukos Sotiris29,Zonnenberg Bernard30,Jansen Anna C31

Affiliation:

1. Sussex Kidney Unit, Royal Sussex County Hospital, Brighton, UK

2. Research and Clinical Institute of Pediatrics, Pirogov Russian National Research Medical University, Moscow, Russian Federation

3. SPS Pediatrična Klinika, Ljubljana, Slovenia

4. TSA Tuberous Sclerosis Association, Nottingham, UK

5. Hôpital Louis Pradel, Claude Bernard University Lyon 1, Lyon, France

6. Department of Neurosciences, Child Neurology and Psychiatry Unit, Tor Vergata University Hospital, Rome, Italy

7. Department of Pediatric Neurology, Karolinska University Hospital, Stockholm, Sweden

8. Novartis Farma S.p.A., Origgio, Italy

9. Association Sclérose Tubéreuse de Bourneville, Gradignan, France

10. Division of Child and Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa

11. Department of Neurology, Centro Hospitalar Lisboa Ocidental, Lisbon, Portugal

12. Department of Paediatrics, Universitätsklinik für Kinder-und Jugendheilkunde, Vienna, Austria

13. Associazione Sclerosi Tuberosa ONLUS, Milan, Italy

14. European Tuberous Sclerosis Complex Association, In den Birken, Dattein, Germany

15. Chefarzt des Zentrums für Sozial- und Neuropädiatrie, Vivantes-Klinikum Neukölln, Berlin, Germany

16. Department of Child Neurology, Warsaw Medical University, Warsaw, Poland

17. Department of Neurology and Epileptology, The Children’s Memorial Health Institute, Warsaw, Poland

18. The Tuberous Sclerosis Multidisciplinary Management Clinic, Sydney Children’s Hospital, Randwick, Australia

19. Sección de Neurología Pediátrica, Hospital Universitari Vall d’Hebron, Barcelona, Spain

20. The Institute of Biomedicine University of Leon, Spain

21. Department of Pediatric Neurology, Necker Enfants Malades Hospital, Paris Descartes University, Paris, France

22. University College London, Institute of Child Health, London, UK

23. Department of Pediatrics, Peking University People's Hospital (PKUPH), Beijing, China

24. Department of Neurology, Tallinn Children Hospital, Tallinn, Estonia

25. Abteilung für Hygiene und Infektiologie, Klinikverbund Kempten-Oberallgäu gGmbH, Kempten, Germany

26. Novartis Healthcare Pvt. Ltd, Hyderabad, Telangana, India

27. National Epilepsy Center, Shizuoka Institute of Epilepsy and Neurological Disorders, Urushiyama Aoi-ku Shizuoka, Japan

28. Department of Genetics, CHU-Hôpital Nord, Saint Etienne, France

29. First Department of Paediatrics, Athens University Medical School, St Sophia Children’s Hospital, Athens, Greece

30. Department of Medical Oncology, University Medical Center, Utrecht, The Netherlands

31. Department of Pediatrics, Pediatric Neurology Unit, UZ Brussel VUB, Brussels, Belgium

Funder

Novartis Pharma AG

Publisher

Oxford University Press (OUP)

Subject

Transplantation,Nephrology

Reference29 articles.

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