1. Patient and patient advocate
2. University of Minnesota School of Medicine , Minneapolis, MN
3. Department of Pediatrics, Division of Genetics, UMass Memorial Children’s Medical Center , Worchester, MA
4. Department of Pediatrics, University of Pittsburgh School of Medicine , Pittsburgh, PA
5. Department of Dermatology, Children’s Hospital of Wisconsin, Medical College of Wisconsin , Milwaukee, WI
6. Department of Dermatology
7. Department of Pediatrics, Dartmouth Health , Manchester, NH , USA