Dermatology Life Quality Index survey in patients with Down syndrome and caregivers-Reference-Cited by-同舟云学术

Dermatology Life Quality Index survey in patients with Down syndrome and caregivers

Published:2024-03-18 Issue:4 Volume:41 Page:671-673
ISSN:0736-8046
Container-title:Pediatric Dermatology
language:en
Short-container-title:Pediatric Dermatology

Author:

Dykman Morgan¹^ORCID,Ernst Madison¹^ORCID,Rakasiwi Tasya²,Buros Stein Amy³,Satin David J.⁴,Holland Kristen E.⁵,Santoro Stephanie L.⁶,Rork Jillian F.²^ORCID

Affiliation:

1. University of Minnesota Medical School Minneapolis Minnesota USA

2. Department of Dermatology, Dartmouth‐Hitchcock Medical Center Children's Hospital at Dartmouth Manchester New Hampshire USA

3. Pediatric Dermatology Research Alliance Portland Oregon USA

4. Department of Family Medicine and Community Health, Center for Bioethics University of Minnesota Minneapolis Minnesota USA

5. Department of Dermatology, Children's Hospital of Wisconsin Medical College of Wisconsin Milwaukee Wisconsin USA

6. Division of Medical Genetics, Department of Pediatrics Massachusetts General Hospital Boston Massachusetts USA

Abstract

AbstractDown syndrome (DS) is associated with many dermatological conditions, including hidradenitis suppurativa, folliculitis, and alopecia areata. Despite the high incidence of skin conditions in this population, there are no quality of life (QoL) studies in the dermatology literature focused on patients with DS or their caregivers. The frequently used QoL assessment tool, the Dermatology Life Quality Index (DLQI), has yet to be studied in this population. This study addresses these disparities by capturing how various skin conditions affect the QoL of people with DS and their caregivers and assessing the utility of the DLQI.

Publisher

Wiley

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/pde.15593

Reference10 articles.

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5. Clinical, genetic and quality-of-life study of a cohort of adult patients with tuberous sclerosis