Information needs and priority use cases of population health researchers to improve preparedness for future hurricanes and floods

Author:

Phuong Jimmy1ORCID,Bandaragoda Christina J2,Haldar Shefali1,Stephens Kari A13ORCID,Ordonez Patricia4,Mooney Sean D1,Hartzler Andrea L1ORCID

Affiliation:

1. Department of Biomedical Informatics and Medical Education, School of Medicine, University of Washington, Seattle, Washington, USA

2. Department of Civil and Environmental Engineering, College of Engineering, University of Washington, Seattle, Washington, USA

3. Department of Family Medicine, School of Medicine, University of Washington, Seattle, Washington, USA

4. Department of Computer Science, University of Puerto Rico Recinto de Río Piedras, San Juan, Puerto Rico, USA

Abstract

Abstract Objective Information gaps that accompany hurricanes and floods limit researchers’ ability to determine the impact of disasters on population health. Defining key use cases for sharing complex disaster data with research communities and facilitators, and barriers to doing so are key to promoting population health research for disaster recovery. Materials and Methods We conducted a mixed-methods needs assessment with 15 population health researchers using interviews and card sorting. Interviews examined researchers’ information needs by soliciting barriers and facilitators in the context of their expertise and research practices. Card sorting ranked priority use cases for disaster preparedness. Results Seven barriers and 6 facilitators emerged from interviews. Barriers to collaborative research included process limitations, collaboration dynamics, and perception of research importance. Barriers to data and technology adoption included data gaps, limitations in information quality, transparency issues, and difficulty to learn. Facilitators to collaborative research included collaborative engagement and human resource processes. Facilitators to data and technology adoption included situation awareness, data quality considerations, adopting community standards, and attractive to learn. Card sorting prioritized 15 use cases and identified 30 additional information needs for population health research in disaster preparedness. Conclusions Population health researchers experience barriers to collaboration and adoption of data and technology that contribute to information gaps and limit disaster preparedness. The priority use cases we identified can help address information gaps by informing the design of supportive research tools and practices for disaster preparedness. Supportive tools should include information on data collection practices, quality assurance, and education resources usable during failures in electric or telecommunications systems.

Funder

National Science Foundation

University of Washington

Consortium of Universities for the Advancement of Hydrologic Sciences

National Science Foundation grants for the development of HydroShare

National Center for Advancing Translational Sciences Institute for Translational Health Sciences

Clinical and Translational Sciences Award Program National Center for Data to Health

National Center for Advancing Translational Sciences/National Institutes of Health

Publisher

Oxford University Press (OUP)

Subject

Health Informatics

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