Understanding experiences of telehealth in palliative care: An exploration using photo interviewing (Preprint)

Author:

Kalla MahimaORCID,Robins-Browne KateORCID,Palmer Victoria JORCID,Wulandari TeresaORCID,Parker CatrionaORCID,Franco Michael EORCID,Bain Chris AORCID,Chen XiaoORCID,Li Maoran,Georgy SamORCID,Metcalf OliviaORCID,Huckvale KitORCID,Hoda RashinaORCID,Poon PeterORCID

Abstract

BACKGROUND

It is widely accepted that the COVID-19 pandemic has accelerated the era of virtual healthcare delivery, but there has been limited exploration of patient and clinician experiences of telehealth.

OBJECTIVE

To understand the telehealth experiences of patients and healthcare practitioners (HCP) in palliative care.

METHODS

Participants were recruited from a major tertiary hospital palliative care unit to participate in a study using photo-elicitation interviews, a qualitative research method that uses photographs during an interview. An intertextual analysis was conducted to identify themes and visual motifs within the interviews.

RESULTS

Three overarching themes (i.e., comfort, connection, and care) were identified as central to the telehealth experience. Patients (n= 6) described telehealth as supporting their physical and psychological comfort and maintaining connection with HCPs, yet there were specific situations where it failed to meet their needs. HCPs (n= 6) recognised the benefit of telehealth for patients but reported physical and professional discomfort using telehealth along with a sense of disconnection, often reported for virtual conferencing in wider contexts. The technical and physical infrastructure surrounding telehealth provided context to the experiential journey.

CONCLUSIONS

This qualitative study presented a deep experiential understanding of telehealth from the perspective of patients and HCPs in a palliative care setting. Patients and HCPs experienced telehealth differently, which is likely to reflect the amount of time they spent engaged in telehealth and different experiences of the burden associated with in-person appointments. The findings contribute to the development of future telehealth improvements for palliative care patients.

CLINICALTRIAL

Not applicable

Publisher

JMIR Publications Inc.

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