Abstract
BackgroundPaediatric complex chronic conditions (CCCs) are life-limiting conditions requiring paediatric palliative care, which, in Belgium, is provided through paediatric liaison teams (PLTs). Like the number of children and adolescents with these conditions in Belgium, their referral to PLTs is unknown.ObjectivesThe aim of the study was to identify, over a 5-year period (2010–2014), the number of children and adolescents (0–19 years) living with a CCC, and also their referral to PLTs.MethodsInternational Classification of Disease codes (ICD-9) corresponding to a CCC, as described by Feudtner et al, and national registration numbers were extracted from the databases of all hospitals (n=8) and PLTs (n=2) based in the Brussels region. Aggregated data and pseudonymised national registration number were transmitted to the research team by a Trusted Third Party (eHealth). Ages and diagnostic categories were calculated using descriptive statistics.ResultsOver 5 years (2010–2014) in the Brussels region, a total of 22 721 children/adolescents aged 0–19 years were diagnosed with a CCC. Of this number, 22 533 were identified through hospital registries and 572 through PLT registries. By comparing the registries, we found that of the 22 533 children/adolescents admitted to hospital, only 384 (1.7%) were also referred to a PLT.ConclusionIn Belgium, there may be too few referrals of children and adolescents with CCC to PLTs that ensure continuity of care.
Funder
Stichting Tegen Kanker-Fondation contre le Cancer
Fonds Marguerite-Marie Delacroix
Subject
Pediatrics, Perinatology and Child Health
Reference20 articles.
1. Pediatric deaths attributable to complex chronic conditions: a population-based study of Washington state, 1980–1997;Feudtner;Pediatrics,2000
2. Steering Committee of the EAPC task force on palliative care for children and adolescents. IMPaCCT. Standards for paediatric palliative care in Europe;Abu-Saad Huijer;Eur J Palliat Care,2017
3. Estimating the global need for palliative care for children: a cross-sectional analysis;Connor;J Pain Symptom Manage,2017
4. Rising national prevalence of life-limiting conditions in children in England;Fraser;Pediatrics,2012
Cited by
17 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献