Co-creating a graphic illness narrative with people with dementia

Author:

McNicol Sarah1ORCID,Leamy Cathy2ORCID

Affiliation:

1. Manchester Metropolitan University

2. Independent Cartoonist

Abstract

This article reports on a project that aimed to pilot a collaborative, patient-led approach to comics creation by developing an artistic process that allows people living with dementia to communicate their experiences and express their opinions. People living with dementia are rarely given the opportunity of speaking for themselves in the media; someone else usually speaks on their behalf, for example family or carers. In the novel approach to comics creation reported here, people with early- to mid-stage dementia worked collaboratively with artists to tell their stories as a way to offer alternative perspectives, and help overcome the stigma associated with dementia.

Funder

Betty Machin and Jane Snape from the Beth Johnson Foundation

Rita, Sue, Maq, John, Michael, Gordon, Fred, Shelagh and Dave

Jessica Lucas who supported the group with arts activities

Publisher

Intellect

Subject

General Medicine

Reference48 articles.

1. Alzheimer’s Disease International (ADI) (2015), ‘Dementia statistics’, Alzheimer’s Disease International, https://www.alz.co.uk/research/statistics. Accessed 9 December 2019.

2. Alzheimer’s Society (2016), ‘Over half of people fear dementia diagnosis, 62 per cent think it means “life is over”’, Alzheimer’s Society, 13 May, https://www.alzheimers.org.uk/news/2018-05-29/over-half-people-fear-dementia-diagnosis-62-cent-think-it-means-life-over. Accessed 12 December 2019.

3. Alzheimer’s Society (2019), ‘Facts for the media’, Alzheimer’s Society, https://www.alzheimers.org.uk/about-us/news-and-media/facts-media. Accessed 12 December 2019.

4. The return of the living dead: Agency lost and found?,2006

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