In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’-Reference-Cited by-同舟云学术

In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’

Published:2019-01-07 Issue:5 Volume:45 Page:351-352
ISSN:0306-6800
Container-title:Journal of Medical Ethics
language:en
Short-container-title:J Med Ethics

Author:

Hepgul Nilay^ORCID,Sleeman Katherine E,Firth Alice M,Johnston Anna,Teo James T H,Bernal William,Dobson Richard J B,Higginson Irene J

Abstract

We welcome Ballantyne & Schaefer’s discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic.

Publisher

BMJ

Subject

Health Policy,Arts and Humanities (miscellaneous),Issues, ethics and legal aspects,Health (social science)

Reference10 articles.

1. Consent and the ethical duty to participate in health data research

2. Education and debate: Consent, confidentiality, and the threat to public health surveillance * Commentary: Don't waive consent lightly---involve the public

3. Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study

4. CogStack - experiences of deploying integrated information retrieval and extraction services in a large National Health Service Foundation Trust hospital;Jackson;BMC Med Inform Decis Mak,2018

5. Patients’ attitudes towards sharing their health information

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