Rethinking Strategies for Positive Newborn Screening Result (NBS+) Delivery (ReSPoND): a process evaluation of co-designing interventions to minimise impact on parental emotional well-being and stress
Author:
Funder
Health Services and Delivery Research Programme
Publisher
Springer Science and Business Media LLC
Subject
Medicine (miscellaneous)
Link
http://link.springer.com/content/pdf/10.1186/s40814-019-0487-5.pdf
Reference43 articles.
1. Public Health England. Newborn blood spot screening: programme handbook. London: Public Health England; 2014.
2. Public Health England. Data collection and performance analysis report newborn blood spot screening in the UK 2015/16. London: Public Health England; 2017.
3. Public Health England. NHS sickle cell and thalassaemia screening programme data report 2015/16: trends and performance analysis. London; 2017.
4. Parker H, Qureshi N, Ulph F, Kai J. Imparting carrier status results detected by universal newborn screening for sickle cell and cystic fibrosis in England: a qualitative study of current practice and policy challenges. BMC Health Serv Res. 2007;7:203.
5. Kai J, Ulph F, Cullinan T, Qureshi N. Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice. Health Technol Assess. 2009;13(57):1–82 iii.
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1. Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study;Journal of Participatory Medicine;2022-07-27
2. Co-designed strategies for delivery of positive newborn bloodspot screening results to parents: the ReSPoND mixed-methods study;Health and Social Care Delivery Research;2022-07
3. Delivering Positive Newborn Screening Results: Cost Analysis of Existing Practice versus Innovative, Co-Designed Strategies from the ReSPoND Study;International Journal of Neonatal Screening;2022-03-14
4. Processing of Positive Newborn Screening Results for Congenital Hypothyroidism: A Qualitative Exploration of Current Practice in England;International Journal of Neonatal Screening;2021-10-13
5. Process evaluation of co-designed interventions to improve communication of positive newborn bloodspot screening results;BMJ Open;2021-08
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