Sharing longitudinal, non-biological birth cohort data: a cross-sectional analysis of parent consent preferences

Author:

Manhas Kiran PoharORCID,Dodd Shawn X.,Page Stacey,Letourneau Nicole,Adair Carol E.,Cui Xinjie,Tough Suzanne C.

Funder

Alberta Centre for Child, Family and Community Research

Publisher

Springer Science and Business Media LLC

Subject

Health Informatics,Health Policy,Computer Science Applications

Reference60 articles.

1. Organization for Economic Cooperation and Development. OECD principles and guidelines for access to research data from public funding. 2007. https://www.oecd.org/sti/sci-tech/38500813.pdf . Accessed 15 May 2017.

2. Social Sciences and Humanities Research Council. Research data archiving policy. 2012. http://www.sshrc-crsh.gc.ca/about-au_sujet/policies-politiques/statements-enonces/edata-donnees_electroniques-eng.aspx . Accessed 13 Oct 2013.

3. Canadian Institutes of Health Research. CIHR open access policy. 2013. http://www.cihr-irsc.gc.ca/e/46068.html . Accessed 13 Oct 2013.

4. Canadian Institutes of Health Research. CIHR response and action plan - 2011 international review panel recommendations. Ottawa: Government of Canada; 2011.

5. Medical Research Council. MRC policy and guidance on sharing of research data from population and patient studies. 2011 https://www.mrc.ac.uk/publications/browse/mrc-policy-and-guidance-on-sharing-of-research-data-from-population-and-patient-studies/ . Accessed 15 Oct 2013.

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