Community-Engaged Research Ethics Training (CERET): developing accessible and relevant research ethics training for community-based participatory research with people with lived and living experience using illicit drugs and harm reduction workers
-
Published:2023-07-06
Issue:1
Volume:20
Page:
-
ISSN:1477-7517
-
Container-title:Harm Reduction Journal
-
language:en
-
Short-container-title:Harm Reduct J
Author:
Morgan Jeffrey,Neufeld Scott D.,Holroyd Heather,Ruiz Jean,Taylor Tara,Nolan Seonaid,Glegg Stephanie
Abstract
Abstract
Background
Community-based participatory research (CBPR) can directly involve non-academic community members in the research process. Existing resources for research ethics training can be inaccessible to team members without an academic background and do not attend to the full spectrum of ethical issues that arise through community-engaged research practices. We detail an approach to capacity building and training in research ethics in the context of CBPR with people who use(d) illicit drugs and harm reduction workers in Vancouver’s Downtown Eastside neighborhood.
Methods
A project team comprised of academic and community experts in CBPR, research ethics, and harm reduction met over five months to develop the Community-Engaged Research Ethics Training (CERET). The group distilled key principles and content from federal research ethics guidelines in Canada, and developed case examples to situate the principles in the context of research with people who use(d) illicit drugs and harm reduction workers. In addition to content related to federal ethics guidelines, the study team integrated additional content related to ethical issues that arise through community-based research, and ethical principles for research in the Downtown Eastside. Workshops were evaluated using a pre-post questionnaire with attendees.
Results
Over the course of six weeks in January–February 2020, we delivered three in-person workshops for twelve attendees, most of whom were onboarding as peer research assistants with a community-based research project. Workshops were structured around key principles of research ethics: respect for persons, concern for welfare, and justice. The discussion-based format we deployed allowed for the bi-directional exchange of information between facilitators and attendees. Evaluation results suggest the CERET approach was effective, and attendees gained confidence and familiarity with workshop content across learning objectives.
Conclusions
The CERET initiative offers an accessible approach to fulfill institutional requirements while building capacity in research ethics for people who use(d) drugs and harm reduction workers. This approach recognizes community members as partners in ethical decision making throughout the research process and is aligned with values of CBPR. Building capacity around intrinsic and extrinsic dimensions of research ethics can prepare all study team members to attend to ethical issues that arise from CBPR.
Publisher
Springer Science and Business Media LLC
Subject
Psychiatry and Mental health,Public Health, Environmental and Occupational Health,Medicine (miscellaneous)
Reference33 articles.
1. Damon W, Callon C, Wiebe L, Small W, Kerr T, McNeil R. Community-based participatory research in a heavily researched inner city neighbourhood: perspectives of people who use drugs on their experiences as peer researchers. Soc Sci Med. 2017;176:85–92. 2. Neufeld S, Chapman J, Crier N, Marsh S, McLeod J, Deane L. Research 101: a process for developing local guidelines for ethical research in heavily researched communities. Harm Reduct J. 2019;16:41. 3. Simon C, Brothers S, Strichartz K, Coulter A, Voyles N, Herdlein A, et al. We are the researched, the researchers, and the discounted: the experiences of drug user activists as researchers. Int J Drug Policy. 2021;98: 103364. 4. Jürgens R. “Nothing about us without us”—greater, meaningful involvement of people who use illegal drugs: a public health, ethical, and human rights imperative, International edition. Toronto: Canadian HIV/AIDS Legal Network, International HIV/AIDS Alliance, Open Society Institute. 2005. https://canadacommons.ca/artifacts/1224917/nothing-about-us-without-us/. Accessed 31 Mar 2023. 5. Kaida A, Carter A, Nicholson V, Lemay J, O’Brien N, Greene S, et al. Hiring, training, and supporting Peer Research Associates: operationalizing community-based research principles within epidemiological studies by, with, and for women living with HIV. Harm Reduct J. 2019;16:47.
Cited by
3 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献
|
|