“Still learning and evolving in our approaches”: patient and stakeholder engagement among Canadian community-based primary health care researchers

Author:

Kendall ClaireORCID,Fitzgerald Michael,Kang Rachel Seoyeon,Wong Sabrina T.,Katz Alan,Fortin Martin,Dionne Emilie,Kuluski Kerry,O’Brien Mary Ann,Ploeg Jenny,Crowe Lois,Liddy Clare

Funder

Canadian Institutes of Health Research

Publisher

Springer Science and Business Media LLC

Subject

General Health Professions,Health(social science)

Reference59 articles.

1. Sieck CJ, Hefner JL, McAlearney AS. Finding the Patient Voice in Research Activities: Perspectives of Patient Advisors and Researchers. J Particip Med. 2017;9:2 Available from: https://participatorymedicine.org/journal/evidence/research/2017/04/01/finding-the-patient-voice-in-research-activities-perspectives-of-patient-advisors-and-researchers/ .

2. Wilson P, Mathie E, Keenan J, et al. Research with patient and public involvement: a Realist evaluation – the RAPPORT study. Heal Serv Deliv Res. 2015;3(38):1–176 Available from: https://www.journalslibrary.nihr.ac.uk/hsdr/hsdr03380/ .

3. Deverka PA, Lavallee DC, Desai PJ, et al. Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement. J Comp Eff Res, 2012 [cited 2018 Jun 11];1(2):181–94. Available from: https://www.futuremedicine.com/doi/10.2217/cer.12.7 .

4. Forsythe LP, Ellis LE, Edmundson L, et al. Patient and stakeholder engagement in the PCORI pilot projects: description and lessons learned. J Gen Intern Med. 2016;31(1):13–21.

5. CIHR. Strategy for Patient-Oriented Research - Patient Engagement Framework - CIHR. 2014 [cited 2018 Apr 19]. Available from: http://www.cihr-irsc.gc.ca/e/48413.html .

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