Adapting the James Lind Alliance priority setting process to better support patient participation: an example from cystic fibrosis-Reference-Cited by-同舟云学术

Adapting the James Lind Alliance priority setting process to better support patient participation: an example from cystic fibrosis

Published:2019-08-20 Issue:1 Volume:5 Page:
ISSN:2056-7529
Container-title:Research Involvement and Engagement
language:en
Short-container-title:Res Involv Engagem

Author:

Rowbotham N. J.,Smith S. J.,Elliott Z. C.,Leighton P. A.,Rayner O. C.,Morley R.,Smyth A. R.^ORCID

Funder

Cystic Fibrosis Trust

University of Nottingham

Nottingham Hospitals Charity

Publisher

Springer Science and Business Media LLC

Subject

General Health Professions,Health(social science)

Link

http://link.springer.com/content/pdf/10.1186/s40900-019-0159-x.pdf

Reference19 articles.

1. Rowbotham NJ, Smith S, Prayle AP, Robinson KA, Smyth AR. Gaps in the evidence for treatment decisions in cystic fibrosis: a systematic review. Thorax. 2018;74:229–36.

2. Dodge JA, Morison S, Lewis PA, Coles EC, Geddes D, Russell G, et al. Incidence, population, and survival of cystic fibrosis in the UK, 1968-95. UK Cystic Fibrosis Survey Management Committee. Arch Dis Child. 1997;77(6):493–6.

3. Cystic Fibrosis Foundation. 2017 patient registry annual data report. Bethesda: Cystic Fibrosis Foundation; 2018. https://www.cff.org/Research/Researcher-Resources/Patient-Registry/2017-Patient-Registry-Annual-Data-Report.pdf .

4. James Lind Alliance. The James Lind Alliance Guidebook version 8. 2018 [updated November 2018]. Available from: http://www.jla.nihr.ac.uk/jla-guidebook/ . Accessed 28 Jan 2019.

5. James Lind Alliance. Report of the JLA community workshop: 50 completed partnerships and beyond. 2017.Available from http://www.jla.nihr.ac.uk/news-and-publications/downloads/Report%20of%20JLA%20Community%20Workshop%2050%20Completed%20Partnerships%20and%20Beyond_final.pdf . Accessed 28 Jan 2019.

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