Optimized care in Patients with Rare Diseases: TSC at the Center for Rare Diseases (ZSEUKS) at Saarland University Medical Center, Germany-Reference-Cited by-同舟云学术

Optimized care in Patients with Rare Diseases: TSC at the Center for Rare Diseases (ZSEUKS) at Saarland University Medical Center, Germany

Published:2017-11 Issue:06 Volume:229 Page:311-315
ISSN:0300-8630
Container-title:Klinische Pädiatrie
language:de
Short-container-title:Klin Padiatr

Author:

Ebrahimi-Fakhari Daniel¹,Poryo Martin²,Graf Norbert³,Zemlin Michael¹,Flotats-Bastardas Marina¹,Heine Gunnar⁴,Ragoschke-Schumm Andreas⁵,Meyer Sascha¹

Affiliation:

1. Department of General Pediatrics and Neonatology, Saarland University Medical Center, Homburg, Germany

2. Department of Pediatric Cardiology, Saarland University Medical Center, Homburg, Germany

3. Department of Pediatric Haematology and Oncology, Saarland University Medical Center, Homburg, Germany

4. Department of Nephrology, Saarland University Medical Center, Homburg, Germany

5. Department of Neurology, Saarland University Medical Center, Homburg, Germany

Abstract

AbstractProviding comprehensive medical care for patients with rare diseases is both challenging and rewarding. We will give a short summary of the most relevant medical issues pertinent to this subject, and will illustrate some of these issues by sharing our experience in the care of patients with TSC disease.

Publisher

Georg Thieme Verlag KG

Subject

Pediatrics, Perinatology and Child Health

Link

http://www.thieme-connect.de/products/ejournals/pdf/10.1055/s-0043-120069.pdf

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