1. Department of Neurology, Leiden University Medical Center, Leiden, The Netherlands
2. Department of Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands
3. Department of Genetics, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands
4. Rijndam Rehabilitation Center, Rotterdam, The Netherlands
5. Department of Rehabilitation, Radboud University Medical Center, Nijmegen, The Netherlands
6. Department of Pulmonology/Center for Home Mechanical Ventilation, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands
7. Department of Intensive Care/Center for Home Mechanical Ventilation, University Medical Center, Erasmus Medical Center, Rotterdam, The Netherlands
8. Department of Pulmonology/Center for Home Mechanical Ventilation, Maastricht University Medical Center, Maastricht, The Netherlands
9. Center for Home Mechanical Ventilation, University Medical Center Utrecht, Utrecht, The Netherlands
10. Department of Neurology, Erasmus University Medical Center, Rotterdam, The Netherlands
11. Department of Child Neurology, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands
12. Dutch Association for Neuromuscular Diseases, Baarn, The Netherlands
13. Department of Rehabilitation, University Medical Center Utrecht, Utrecht, The Netherlands
14. Duchenne Parent Project, The Netherlands
15. Department of Paediatric Cardiology, Leiden University Medical Center, Leiden, The Netherlands