Quality of life: Guidelines for the care of people with spina bifida-Reference-Cited by-同舟云学术

Quality of life: Guidelines for the care of people with spina bifida

Published:2020-12-22 Issue:4 Volume:13 Page:565-582
ISSN:1875-8894
Container-title:Journal of Pediatric Rehabilitation Medicine
language:
Short-container-title:PRM

Author:

Sawin Kathleen J.¹²,Brei Timothy J.³⁴,Houtrow Amy J.⁵

Affiliation:

1. Department of Nursing Research and Evidenced-Based Practice, Children’s Wisconsin, Milwaukee, WI, USA

2. College of Nursing, University of Wisconsin-Milwaukee Milwaukee, WI, USA

3. Spina Bifida Association, USA

4. Department of Pediatrics, Division of Developmental Medicine, Seattle Children’s Hospital, University of Washington School of Medicine, Seattle, WA, USA

5. Department of Physical Medicine and Rehabilitation, University of Pittsburgh School of Medicine, Pittsburgh, PA, USA

Abstract

Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) are important concepts across the life span for those with spina bifida (SB). This article discusses the SB Quality of Life Healthcare Guidelines from the 2018 Spina Bifida Association’s Fourth Edition of the Guidelines for the Care of People with Spina Bifida. The focus of these QOL Guidelines was to summarize the evidence and expert opinions on how to mitigate factors that negatively impact QOL/HRQOL or enhance the factors positively related to QOL/HRQOL, the measurement of QOL/HRQOL and the gaps that need to be addressed in future research.

Publisher

IOS Press

Subject

Rehabilitation,Physical Therapy, Sports Therapy and Rehabilitation,Pediatrics, Perinatology, and Child Health

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