Long-term Outcomes of Children with Myelomeningocele and the Quality of Life in Survivors

Author:

Çakmak Hatice Mine1ORCID,Önbaş Ömer2ORCID,Tuncer Cengiz3ORCID,Kocabay Kenan2ORCID,Kılıç Güven2ORCID,Zamur Çağatay2ORCID,Sav Nadide Melike1ORCID,Türay Sevim1ORCID,Öz Büşra1ORCID,Duru Soner4ORCID,Çevik Fatma Zehra5ORCID

Affiliation:

1. DÜZCE ÜNİVERSİTESİ

2. DÜZCE ÜNİVERSİTESİ, TIP FAKÜLTESİ

3. DÜZCE ÜNİVERSİTESİ, TIP FAKÜLTESİ, TIP PR.

4. CINCINNATI'S RESEARCH CENTER

5. DUZCE UNIVERSITY

Abstract

Objective: Myelomeningocele causes chronic health conditions and diminished quality of life. Therefore, we evaluated the data of 101 children with MMC (myelomeningocele) and aimed to compare the quality of life between children with MMC and their siblings. Children with MMS have a diminished quality of life with social and behavioral aspects and health issues. Method: This retrospective study collected the data from electronic files. KIDSCREEN 10 quality of life instrument was used for measuring the quality of life. Results: Of 101 children, 93 were survivors. Comparing the survivors (n=93) with their siblings, survivors had lower HRQoL (health-related quality of life) scores in subdimensions of physical well-being (p

Publisher

Konuralp Medical Journal

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