How do I treat when there is no treatment?

Author:

Regier Debra S.1,Hallie Andrew E.1,Bloom Miriam2,Fisher Deborah3

Affiliation:

1. Rare Disease Institute, Children’s National Hospital, Washington DC, USA

2. Hospitalist Division, Children’s National Hospital, Washington DC, USA

3. PANDA Palliative Care Team, Children’s National Hospital, Washington DC, USA

Publisher

IOS Press

Reference25 articles.

1. Committee on Bioethics and Committee on Hospital Care. Palliative care for children;American Academy of Pediatrics;Pediatrics,2000

2. Cameron’s Arc: Creating a Full Life Teaching and Resource Guide with DVD American Academy of Pediatrics, Itasca, Illinois, 2007.

3. Parental guilt: The part played by the clinical geneticist;Chapple;J Genet Couns,1995

4. Congedi S. , Orzalesi M. , Di Pede C. and Benini F. , Pain in Mucopolysaccharidoses: Analysis of the Problem and Possible Treatments, Int J Mol Sci 19 (2018).

5. Pediatric palliative care patients: A prospective multicenter cohort study;Feudtner;Pediatrics,2011

Cited by 2 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. Pharmacists are initiators in palliative care for patients with rare diseases;Orphanet Journal of Rare Diseases;2023-06-08

2. Malattie rare;Medico e Bambino;2021-07-31

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