Abstract
AbstractThe World Health Organization supports early delivery of palliative care as it reduces unnecessary hospital admissions and the inappropriate use of health care services. A community pharmacist can play a key role in advocating timely access to palliative care. Medication reconciliation must alert them to start communicating with the patient and/or his relatives about refocusing treatment and care as part of palliative and terminal care. Pharmaceutical activities for these patients include dispensing of devices and medicinal products, compounding personalized medication and participating as a member of the Palliative Support Team. Most of the several thousands of rare diseases are caused by genetic defects and up to now have no cure and a late diagnosis.
Publisher
Springer Science and Business Media LLC
Subject
Pharmacology (medical),Genetics (clinical),General Medicine
Reference53 articles.
1. Gaucher N, Humbert N, Gauvin F. What do we know about pediatric palliative care patients consulting to the pediatric emergency department? Pediatr Emerg Care. 2021;37(7):e396–400. https://doi.org/10.1097/PEC.0000000000001620. PMID: 30256320.
2. Hoell JI, Warfsmann J, Distelmaier F, et al. Challenges of palliative care in children with inborn metabolic diseases. Orphanet J Rare Dis. 2018;13:112. https://doi.org/10.1186/s13023-018-0868-5.
3. Freibert S, Frantoni K, Wiener L, Gaines J, Alderfer M, Lyon M. Introduction to a novel palliative care intervention for family caregivers of children and adolescents living with rare diseases. J Pain Sympt Manag. 2019;57(2):367. https://doi.org/10.1016/j.jpainsymman.2018.12.037.
4. Regier D, Hallie A, Bloom M, Fisher D. How to treat when there is no treatment? Transl Sci Rare Dis. 2019;4(3–4):189–95. https://doi.org/10.3233/TRD-190043.
5. International Children’s Palliative Care Network. 10 Rare Childhood Diseases that would benefit from palliative care. https://www.icpcn.org/10-rare-childhood-diseases-that-would-benefit-from-palliative-care/ Accessed on 1 Sept 2022
Cited by
2 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献