Patient-Reported Outcomes, Digital Health, and the Quest to Improve Health Equity

Author:

Pritchett Joshua C.123ORCID,Patt Debra4,Thanarajasingam Gita1,Schuster Anne5,Snyder Claire678

Affiliation:

1. Division of Hematology, Mayo Clinic, Rochester, MN

2. Department of Oncology, Mayo Clinic, Rochester, MN

3. Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery, Mayo Clinic, Rochester, MN

4. Texas Oncology, Dallas Texas and Dell Medical School at The University of Texas at Austin, Austin, TX

5. Department of Biomedical Informatics, The Ohio State University College of Medicine, Columbus, OH

6. Department of Medicine, Johns Hopkins School of Medicine, Baltimore, MD

7. Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins, Baltimore, MD

8. Department of Health Policy & Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD

Abstract

The theme of the 2023 American Society of Clinical Oncology Annual Meeting is Partnering With Patients: The Cornerstone of Cancer Care and Research. As we aim to partner with patients to improve their health care, digital tools have the potential to enhance patient-centered cancer care and make clinical research more accessible and generalizable. Using electronic patient-reported outcomes (ePROs) to collect patients' reports of symptoms, functioning, and well-being facilitates patient-clinician communication and improves care and outcomes. Early studies suggest that racial and ethnic minority populations, older patients, and patients with less education may benefit even more from ePRO implementation. Clinical practices looking to implement ePROs can refer to the resources of the PROTEUS Consortium (Patient-Reported Outcomes Tools: Engaging Users & Stakeholders). Beyond ePROs, in response to the COVID-19 pandemic, cancer practices have rapidly adopted other digital tools (eg, telemedicine, remote patient monitoring). As implementation grows, we must be aware of the limitations of these tools and implement them in ways to promote optimal function, access, and ease of use. Infrastructure, patient, provider, and system-level barriers need to be addressed. Partnerships across all levels can inform development and implementation of digital tools to meet the needs of diverse groups. In this article, we describe how we use ePROs and other digital health tools in cancer care, how digital tools can expand access to and generalizability of oncology care and research, and prospects for broader implementation and use.

Publisher

American Society of Clinical Oncology (ASCO)

Subject

General Medicine

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