Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data-Reference-Cited by-同舟云学术

Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data

Published:2020-04-06 Issue:6 Volume:21 Page:377-384
ISSN:1471-0056
Container-title:Nature Reviews Genetics
language:en
Short-container-title:Nat Rev Genet

Author:

Hudson Maui^ORCID,Garrison Nanibaa’ A.^ORCID,Sterling Rogena^ORCID,Caron Nadine R.,Fox Keolu,Yracheta Joseph,Anderson Jane,Wilcox Phil,Arbour Laura,Brown Alex,Taualii Maile,Kukutai Tahu,Haring Rodney,Te Aika Ben,Baynam Gareth S.^ORCID,Dearden Peter K.^ORCID,Chagné David^ORCID,Malhi Ripan S.,Garba Ibrahim^ORCID,Tiffin Nicki^ORCID,Bolnick Deborah^ORCID,Stott Matthew^ORCID,Rolleston Anna K.,Ballantyne Leah L.,Lovett Ray,David-Chavez Dominique,Martinez Andrew,Sporle Andrew,Walter Maggie,Reading Jeff,Carroll Stephanie Russo^ORCID

Publisher

Springer Science and Business Media LLC

Subject

Genetics(clinical),Genetics,Molecular Biology

Link

http://www.nature.com/articles/s41576-020-0228-x.pdf

Reference95 articles.

1. Claw, K. G. et al. A framework for enhancing ethical genomic research with communities. Nat. Commun. 9, 2957 (2018).

2. Amann, R. I. et al. Toward unrestricted use of public genomic data. Science 363, 350–352 (2019).

3. Salter, B. & Salter, C. Controlling new knowledge: genomic science, governance and the politics of bioinformatics. Soc. Stud. Sci. 47, 263–287 (2017).

4. David-Chavez, D. M. A Guiding Model For Decolonizing Environmental Science Research and Restoring Relational Accountability with Indigenous Communities. Thesis Colorado State Univ. (2019).

5. McInnes, R. R. 2010 presidential address: culture: the silent language geneticists must learn — genetic research with indigenous populations. Am. J. Hum. Genet. 88, 254–261 (2011).

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