Developing a policy for paediatric biobanks: principles for good practice-Reference-Cited by-同舟云学术

Developing a policy for paediatric biobanks: principles for good practice

Published:2012-06-20 Issue:1 Volume:21 Page:2-7
ISSN:1018-4813
Container-title:European Journal of Human Genetics
language:en
Short-container-title:Eur J Hum Genet

Author:

Hens Kristien, ,Van El Carla E,Borry Pascal,Cambon-Thomsen Anne,Cornel Martina C,Forzano Francesca,Lucassen Anneke,Patch Christine,Tranebjaerg Lisbeth,Vermeulen Eric,Salvaterra Elena,Tibben Aad,Dierickx Kris

Publisher

Springer Science and Business Media LLC

Subject

Genetics (clinical),Genetics

Link

http://www.nature.com/articles/ejhg201299.pdf

Reference51 articles.

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3. Godard B, Aymé S, Schmidtke J, Cassiman J-J : Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective. Eur J Hum Genet. 2003; 11 (Suppl 2): S88–S122.

4. Rothstein MA : Expanding the ethical analysis of biobanks. J Law, Med Ethics 2005; 33: 89–101.

5. Hens K, Nys H, Cassiman JJ, Dierickx K : Genetic research on stored tissue samples from minors: a systematic review of the ethical literature. Am J Med Genet A 2009; 149A: 2346–2358.

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