Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective

Author:

Godard Béatrice,Schmidtke Jörg,Cassiman Jean-Jacques,Aymé Ségolène

Publisher

Springer Science and Business Media LLC

Subject

Genetics (clinical),Genetics

Reference77 articles.

1. Deschênes M, Cardunal G, Knoppers BM, Glass KC : Human genetic research, DNA banking and consent: a question of “form”? Clin Genet 2001; 59: 221–239.

2. McEwen JE, Reilly PR : Setting standards for DNA banks: toward a model code of conduct, Microb. Comp. Genomics 1996; 1: 165–177.

3. Moutel G, de Montgolfier S, Meningaud JP, Herve C : Bio-libraries and DNA storage: assessment of patient perception of information. Med Law 2001; 20: 193–204.

4. Medical Research Council: Human Tissue and Biological Samples for Use in Research, Operational and Ethical Guidelines, 2001.

5. National Bioethica Advisory Commission (NBAC): Research involving human biological materials: ethical issues and policy guidance. Rockville, MD; August 1999.

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