No need for options for choice for unsolicited findings in informed consent for clinical genetic testing
Author:
Publisher
Springer Science and Business Media LLC
Subject
Genetics (clinical),Genetics
Link
https://www.nature.com/articles/s41431-023-01424-7.pdf
Reference6 articles.
1. Hallquist MLG, Borensztein MJ, Coughlin CR 2nd, Buchanan AH, Faucett WA, Peay HL, et al. Defining critical educational components of informed consent for genetic testing: views of US-based genetic counselors and medical geneticists. Eur J Hum Genet. 2023. https://doi.org/10.1038/s41431-023-01401-0.
2. Faden R, Beauchamp TL. A history and theory of informed consent. Oxford: Oxford University Press; 1986.
3. Vears DF, Borry P, Savulescu J, Koplin JJ. Old challenges or new issues? Genetic health professionals’ experiences obtaining informed consent in diagnostic genomic sequencing. AJOB Empir Bioeth. 2020;12:12–23.
4. Bos W, Bunnik EM. Informed consent practices for exome sequencing: an interview study with clinical geneticists in the Netherlands. Mol Genet Genom Med. 2022;10:e1882.
5. Van der Schoot V, Haer-Wigman L, Feenstra I, Tammer F, Oerlemans AJM, van Koolwijk MPA, et al. Lessons learned from unsolicited findings in clinical exome sequencing of 16,482 individuals. Eur J Hum Genet. 2022;30:170–7.
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1. Genomic sequencing in newborn screening: balancing consent with the right of the asymptomatic at-risk child to be found;European Journal of Human Genetics;2024-08-12
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