Return of individual genomic research results: are laws and policies keeping step?
Author:
Funder
Genome Canada
Publisher
Springer Science and Business Media LLC
Subject
Genetics (clinical),Genetics
Link
http://www.nature.com/articles/s41431-018-0311-3.pdf
Reference27 articles.
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2. Brunfeldt M, Teare H, Soini S. Kääriäinen H. Perceptions of legislation relating to the sharing of genomic biobank results with donors—a survey of BBMRI-ERIC biobanks. Eur J Hum Genet. 2018;26:324–9.
3. Shabani M, Dyke SOM, Joly Y, Borry P. Controlled access under review: improving the governance of genomic data access. PLoS Biol. 2015;13:e1002339. https://doi.org/10.1371/journal.pbio.1002339 .
4. Knoppers BM. International ethics harmonization and the global alliance for genomics and health. Genome Med. 2014;6:13. https://doi.org/10.1186/gm530 .
5. Global Alliance for Genomics and Health. Strategic Roadmap. https://www.ga4gh.org/howwework/strategic-roadmap.html (2018). (accessed 12 Dec 2018).
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