Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?

Author:

Budin-Ljøsne Isabelle12,Mascalzoni Deborah34,Soini Sirpa5,Machado Helena6,Kaye Jane7,Bentzen Heidi Beate128,Rial-Sebbag Emmanuelle9,D'Abramo Flavio10,Witt Michał11,Schamps Geneviève12,Katić Višnja13,Krajnovic Dusanca14,Harris Jennifer R.15,

Affiliation:

1. Centre for Medical Ethics, Institute of Health and Society, University of Oslo, Oslo, Norway.

2. Norwegian Cancer Genomics Consortium, Kreftgenomikk.no, Oslo, Norway.

3. Center for Research Ethics and Bioethics, Uppsala University, Uppsala, Sweden.

4. Center for Biomedicine, EURAC, Bolzano, Italy.

5. Helsinki Biobank, Helsinki University Hospital, Helsinki, Finland.

6. Centre for Social Studies, University of Coimbra, Coimbra, Portugal.

7. Nuffield Department of Population Health, Centre for Health, Law and Emerging Technologies (HeLEX), University of Oxford, Oxford, United Kingdom.

8. Norwegian Research Center for Computers and Law, Faculty of Law, University of Oslo, Oslo, Norway.

9. UMR 1027, Inserm, Université de Toulouse, Toulouse, France.

10. Charité–Universitätsmedizin Berlin, Berlin, Germany.

11. Institute of Human Genetics, Polish Academy of Sciences, Poznań, Poland.

12. Centre for Medical and Biomedical Law, Université Catholique de Louvain, Leuven, Belgium.

13. School of Medicine, University of Rijeka, Rijeka, Croatia.

14. Faculty of Pharmacy, Belgrade University, Belgrade, Serbia.

15. Department of Genetics and Bioinformatics, Norwegian Institute of Public Health, Oslo, Norway.

Publisher

Mary Ann Liebert Inc

Subject

Cell Biology,General Biochemistry, Genetics and Molecular Biology,General Medicine,Medicine (miscellaneous)

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