Parenting young children with developmental disabilities: Experiences during the COVID-19 pandemic in the U.S.
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Published:2023-07-14
Issue:2
Volume:4
Page:156-175
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ISSN:2717-638X
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Container-title:Journal of Childhood, Education & Society
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language:
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Short-container-title:J Child Edu Soc
Author:
Kunze MeganORCID, Gomez DouglasORCID, Glenn ElizabethORCID, Todis BonnieORCID, Riddle IlkaORCID, Karns Christina M.ORCID, Glang AnnORCID, Lee McIntyre LauraORCID
Abstract
High-stress events (e.g., natural disasters, political unrest, disease) significantly impact the lives of children and families. The Coronavirus Disease 2019 (COVID-19) is one event that has brought numerous hardships to families and children with developmental disabilities (DD), likely exacerbating already heightened levels of stress. For this study, we interviewed mothers living in the U.S. (N = 14) of 2- to 8-year-old children with DD about how COVID-19 has affected their family life. The interviews examined how the pandemic impacted (a) their child’s educational, therapeutic, and medical services, (b) their stress and resiliency, and (c) their parenting role as an advocate, educator, and interventionist. The results of our thematic analysis of the qualitative data highlight four domains with themes that describe families’ experiences as indicated by the mothers interviewed. Voices of families are essential in the delivery of effective and ethical early intervention for young children with disabilities. Based on the data from these interviews with mothers, suggestions for family-focused intervention to support families during high-stress events are discussed. As the long-term effects of the pandemic remain unknown, suggestions for future research to continue to examine the impact of high-stress experiences on young children with DD and their families are also presented.
Funder
National Institute on Disability, Independent Living, and Rehabilitation Research
Publisher
Journal of Childhood, Education and Society
Subject
Education,Developmental and Educational Psychology
Reference45 articles.
1. Asbury, K., Fox, L., Deniz, E., Code, A., & Toseeb, U. (2021). How is COVID-19 affecting the mental health of children with special educational needs and disabilities and their families?. Journal of autism and developmental disorders, 51(5), 1772-1780. 2. Bentenuto, A., Mazzoni, N., Giannotti, M., Venuti, P., & de Falco, S. (2021). Psychological impact of Covid-19 pandemic in Italian families of children with neurodevelopmental disorders. Research in Developmental Disabilities, 109, 103840. 3. Bhaskar, R. (1989). The possibility of naturalism (2nd ed.). Harvester Wheatsheaf. 4. Brantlinger, E., Jimenez, R., Klingner, J., Pugach, M., & Richardson, V. (2005). Qualitative studies in special education. Exceptional Children, 71(2), 195-207. 5. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101.
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