Promoting community stakeholder engagement in research on treatment for pregnant women with opioid use disorder

Author:

Johnson Deborah J1ORCID,Brunette Mary F234ORCID,Goodman Daisy J563ORCID,Adams Meagan7,Bryer Cheri68,Doherty Julie R1ORCID,Flanagan Victoria9,Frew Julia R28ORCID,Mullins Sarah9,Sheehan Farrah1,Tobar-Santamaria Allison1ORCID,Whitney Sarah,Lord Sarah12ORCID

Affiliation:

1. Dartmouth College Geisel School of Medicine – Center for Technology & Behavioral Health, 46 Centerra Parkway Suite 300 Lebanon, Hanover, NH 03755-1404, USA

2. Dartmouth College Geisel School of Medicine – Psychiatry, Hanover, NH 03755, USA

3. Dartmouth Health – Community and Family Medicine, Lebanon, NH 03756-1000, USA

4. Dartmouth College Geisel School of Medicine – The Dartmouth Institute for Health Policy and Clinical Practice, Hanover, NH 03755, USA

5. Dartmouth College Geisel School of Medicine – Obstetrics & Gynecology, Hanover, NH 03755, USA

6. Dartmouth Health – Obstetrics & Gynecology, 1 Medical Center Drive Lebanon, Lebanon, NH 03756-1000, USA

7. Dartmouth Health – Population Health, Lebanon, NH 03756-1000, USA

8. Dartmouth Health – Department of Psychiatry, Hanover, NH 03755-1404, USA

9. Dartmouth Health, Dartmouth-Hitchcock Medical Center, Lebanon, NH 03756-1000, USA

Abstract

Aim: Community stakeholder engagement in research (CSER) can improve research relevance and efficiency as well as prevent harmful practices, particularly for vulnerable populations. Despite potential benefits, researchers lack familiarity with CSER methods. Methods: We describe CSER strategies used across the research continuum, including proposal development, study planning and the first years of a comparative effectiveness study of care for pregnant women with opioid use disorder. Results: We highlight successful strategies, grounded in principles of engagement, to establish and maintain stakeholder relationships, foster bidirectional communication and trust and support active participation of women with opioid use disorder in the research process. Conclusion: CSER methods support research with a disenfranchised population. Future work will evaluate the impact of CSER strategies on study outcomes and dissemination.

Funder

Patient-Centered Outcomes Research Institute

Publisher

Becaris Publishing Limited

Subject

Health Policy

Reference40 articles.

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