An assessment of patient perspectives on pharmacogenomics educational materials

Author:

Asiedu Gladys B1ORCID,Finney Rutten Lila J12,Agunwamba Amenah1,Bielinski Suzette J2,St. Sauver Jennifer L12,Olson Janet E2,Rohrer Vitek Carolyn R3

Affiliation:

1. Robert D. & Patricia E. Kern Center for The Science of Health Care Delivery, Mayo Clinic, 200 First St SW, Rochester, MN 55905, USA

2. Department of Health Sciences Research, Mayo Clinic, 200 First St. SW, Rochester, MN 55905, USA

3. Center for Individualized Medicine, Mayo Clinic, 200 First St SW, Rochester, MN 55905, USA

Abstract

Aim: Pharmacogenomics (PGx) holds potential to improve patient treatment; yet, effective patient educational materials are limited. Materials & methods: Using a ‘think aloud’ technique, we sought to understand comprehension and perceptions of a multimedia PGx results packet including a cover letter with QR code to an educational video, brochure and prototype report in the context of PGx case vignettes. Results: The cover letter and video components were viewed less favorably due to excess detail, complex jargon and technology challenges. Recommendations were to enhance comprehension and utility and to customize materials to each patient’s medications or disease conditions. Conclusion: Educational materials were revised to improve comprehension and usability, and diminish concerns to better prepare patients to understand the importance of discussing test results with their provider.

Publisher

Future Medicine Ltd

Subject

Pharmacology,Genetics,Molecular Medicine

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