The Challenges of Living with and Caring for a Child or Children Affected by Neuronal Ceroid Lipofuscinosis Type 2 Disease: In-Depth Family Surveys in the United Kingdom and Germany-Reference-Cited by-同舟云学术

The Challenges of Living with and Caring for a Child or Children Affected by Neuronal Ceroid Lipofuscinosis Type 2 Disease: In-Depth Family Surveys in the United Kingdom and Germany

Published:2020 Issue: Volume:8 Page:
ISSN:2326-4594
Container-title:Journal of Inborn Errors of Metabolism and Screening
language:
Short-container-title:J. inborn errors metab. screen.

Author:

Schulz Angela¹,Jain Mohit²,Butt Thomas³^ORCID,Ballinger Rachel⁴,Eliasson Lina⁴,Macey Jake⁴,Peasgood Tessa⁵,Olaye Andrew²,Terzakis-Snyder Irini-Alexia⁶,Dyck Iris⁷,West Andrea⁸

Affiliation:

1. University Medical Center Hamburg-Eppendorf, Germany

2. BioMarin Europe Ltd., United Kingdom

3. University College London, United Kingdom

4. ICON Plc., United Kingdom

5. University of Sheffield, United Kingdom

6. Terzakis Consulting, Germany

7. NCL-Gruppe Deutschland e.V., Germany

8. Batten Disease Family Association, United Kingdom

Publisher

FapUNIFESP (SciELO)

Subject