Parental experiences of having a child with CLN3 disease (juvenile Batten disease) and how these experiences relate to family resilience-Reference-Cited by-同舟云学术

Parental experiences of having a child with CLN3 disease (juvenile Batten disease) and how these experiences relate to family resilience

Published:2022-03-04 Issue:5 Volume:48 Page:842-851
ISSN:0305-1862
Container-title:Child: Care, Health and Development
language:en
Short-container-title:Child

Author:

Krantz Mattias¹,Malm Emma¹,Darin Niklas²³,Sofou Kalliopi²³,Savvidou Antri²³,Reilly Colin²³,Boström Petra¹

Affiliation:

1. Department of Psychology University of Gothenburg Gothenburg Sweden

2. Department of Pediatrics Institute of Clinical Sciences University of Gothenburg Gothenburg Sweden

3. Queen Silvia Children's Hospital, Sahlgrenska University Hospital Gothenburg Sweden

Funder

Statens geotekniska institut

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health,Developmental and Educational Psychology,Pediatrics, Perinatology and Child Health

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/cch.12993

Reference30 articles.

1. Neurobehavioral Features and Natural History of Juvenile Neuronal Ceroid Lipofuscinosis (Batten Disease)

2. Symptomatisk behandling av pasienter med barndomsformer av nevronal ceroid lipofuscinose (NCL);Augestad L. B.;Tidsskrift‐Norsk Psykologforening,2008

3. Psychiatric symptoms of children and adolescents with juvenile neuronal ceroid lipofuscinosis

4. Parents' descriptions and experiences of young children recently diagnosed with intellectual disability

5. Using thematic analysis in psychology

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