Communication of bad news in the context of neonatal palliative care: experience of intensivist nurses

Author:

Camilo Beatriz Helena Naddaf1ORCID,Serafim Taynnara Caroline1ORCID,Salim Natália Rejane1ORCID,Andreato Álida Maria de Oliveira2ORCID,Roveri Júlia Rudzinski2ORCID,Misko Maira Deguer2ORCID

Affiliation:

1. Universidade Federal de São Carlos, Brasil

2. Universidade Estadual de Campinas, Brasil

Abstract

ABSTRACT Objectives: To know the experiences of nurses in neonatal intensive care units in the face of the process of communicating bad news to the family of newborns in palliative care. Methods: Study with a descriptive qualitative approach, in which 17 professionals participated. Data were collected through a semi-structured interview script, from December/2018 to February/2019, and submitted to content analysis. Results: Four theoretical categories emerged, with 11 subcategories inserted: meanings attributed to bad news; nursing as a support for the family; difficulties in dealing with the process of communicating bad news; nursing and involvement with the family’s suffering. Final considerations: The challenges to deal with the situation are related to lack of preparation, impotence, and subjectivities. The results broaden knowledge on the subject and enable the improvement of nursing care in this context.

Publisher

FapUNIFESP (SciELO)

Subject

General Medicine

Reference20 articles.

1. Primary palliative care in neonatal intensive care;Marc-Aurele KL;Semin Perinatol,2017

2. Perception of health professionals about neonatal palliative care;Silva EMB;Rev Bras Enferm,2019

3. Integrating palliative care and symptom refief into paediatrics: a WHO guide for health care planners, implementers and managers,2018

4. Neonatal palliative care;Parravicini E;Curr Opin Pediatr,2017

5. Communicating bad news: an integrative review of the nursing literature;Fontes CMB;Rev Bras Enferm,2017

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