Stigma and cystic fibrosis

Author:

Pizzignacco Tainá Maues Peluci1,Mello Débora Falleiros de1,Lima Regina Aparecida Garcia de1

Affiliation:

1. Universidade de São Paulo, Brazil

Abstract

Cystic Fibrosis (CF), also known as Mucoviscidosis, is a chronic disease of autosomal recessive origin and so far incurable. This analysis considers some characteristics of patients and family members that indicate it is a stigmatizing disease. The CF stigma’s impact on the lives of children and adolescents can affect treatment adherence, socialization, family relationships and the formation of their life histories, with direct consequences on their quality of life.

Publisher

FapUNIFESP (SciELO)

Subject

General Nursing

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