The Lived Experience of Jordanian Parents of Children with Cystic Fibrosis: Qualitative Study
Author:
Publisher
Elsevier BV
Subject
Pediatrics
Reference21 articles.
1. Narrativas da experiência de pais de crianças com fibrosecística;Afonso;Interface - Comunicação, Saúde, Educação,2015
2. Spectrum of mutations of cystic fibrosis in the 22 Arab countries: A systematic review;Al-Sadeq;Respirology,2019
3. The road for survival improvement of cystic fibrosis patients in Arab countries;Banjar;International Journal of Pediatrics and Adolescent Medicine,2015
4. Costs and health-related quality of life of patients with cystic fibrosis and their carers in France;Chevreul;Journal of Cystic Fibrosis,2015
5. Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe;Chevreul;The European Journal of Health Economics,2016
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1. Development and validation of a supportive programme for family caregivers of children suffering from cystic fibrosis: protocol for a sequential exploratory mixed-methods study;BMJ Open;2024-06
2. Parents’ Knowledge of the Impact of Cystic Fibrosis on the Quality of Life of Children and Adolescents Suffering from This Disease as an Element of Patient Safety;Journal of Clinical Medicine;2023-08-10
3. Proposal of a guide for the interpretation, simplification of the regulatory process and good tax compliance, case of digital taxpayers, influencers;PLOS ONE;2023-06-16
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