Communication Needs for Individuals With Rare Diseases Within and Around the Healthcare System of Northern Ireland

Author:

Crowe Ashleen L.,McKnight Amy Jayne,McAneney Helen

Publisher

Frontiers Media SA

Subject

Public Health, Environmental and Occupational Health

Reference45 articles.

1. Regulation (EC) No 141/2000 of the European Parliament and of the Council1999

2. EuropeanCommission The European Commission Report: Rare Diseases a Major Unmet Medical Need2017

3. The UK Strategy for Rare Diseases2013

4. Providing High Quality Care for People Affected by Rare Diseases – The Northern Ireland Implementation Plan for Rare Diseases2015

5. The supportive care needs of parents with a child with a rare disease: results of an online survey;Pelentsov;BMC Family Practice.,2016

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