Author:
Pelentsov Lemuel J.,Fielder Andrea L.,Laws Thomas A.,Esterman Adrian J.
Publisher
Springer Science and Business Media LLC
Reference52 articles.
1. Anderson M, Elliott E, Zurynski Y. Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support. Orphanet J Rare Dis. 2013;8(1):22. doi: 10.1186/1750-1172-8-22 .
2. de Vrueh R. Why R&D into Rare Diseases Matter. In: Bali RK, Bos L, Gibbons MC, Ibell S, editors. Rare Diseases in the Age of Health 2.0. Communications in Medical and Care Compunetics. Heidelberg: Springer Berlin; 2014. p. 3–20.
3. Anderson D, Dumont S, Jacobs P, Azzaria L. The personal costs of caring for a child with a disability: a review of the literature. Public Health Rep. 2007;122(1):3–16. doi: 10.1017/CBO9781139167291.003 .
4. Eurordis EOfRD. Rare diseases: understanding this public health priority. 2005. http://www.eurordis.org/IMG/pdf/princeps_document-EN.pdf . Accessed 13 April 2013.
5. Zurynski Y, Frith K, Leonard H, Elliott E. Rare childhood diseases: how should we respond? Arch Dis Child. 2008;93(12):1071–4. doi: 10.1136/adc.2007.134940 .
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