Disaggregating the Asian “Other”: Heterogeneity and Methodological Issues in Research on Asian Americans with Disabilities

Abstract

Asian Americans comprise the fastest growing racial or ethnic group in the US. Between 2000 and 2019, their numbers almost doubled, from 11.9 million to 22.2 million. The numbers of people with disabilities within this demographically important population, which are also growing, puts stress on the service delivery sector. This situation indicates a pressing need for research on lived experiences of disabled Asian Americans. A review of the extant literature shows that Asian Americans are underrepresented in the research on disability and/or mental health. This lack of hard data is compounded by the tendency to treat Asian ethnicities as monolithic. The US Census Bureau recognizes more than 20 distinct Asian nationalities, ranging from South Asian Pakistani Americans to Southeast Asian Americans. Aggregating all Asian Americans together in surveys and studies impedes a sophisticated understanding of their unique needs and strengths. From a policy or systems perspective, inadequate data representation in the research literature, including outdated conclusions, is an implicit form of disenfranchisement. This conceptual article examines issues and implications around the lack of systematic attention to diversity within the Asian American population in disability research.