Spiritual Care through the Lens of Portuguese Palliative Care Professionals: A Qualitative Thematic Analysis

Author:

Matos Juliana12,Querido Ana234ORCID,Laranjeira Carlos235ORCID

Affiliation:

1. Hospital Palliative Care Team, Local Health Unit of the Leiria Region, Hospital of Santo André, Rua das Olhalvas, 2410-197 Leiria, Portugal

2. School of Health Sciences, Polytechnic University of Leiria, Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria, Portugal

3. Centre for Innovative Care and Health Technology (ciTechCare), Polytechnic University of Leiria, Campus 5, Rua de Santo André—66–68, 2410-541 Leiria, Portugal

4. Center for Health Technology and Services Research (CINTESIS), NursID, University of Porto, 4200-450 Porto, Portugal

5. Comprehensive Health Research Centre (CHRC), University of Évora, 7000-801 Évora, Portugal

Abstract

Providing spiritual care is paramount to patient-centered care. Despite the growing body of data and its recognized importance in palliative care, spiritual care continues to be the least advanced and most overlooked aspect. This study aims to explore the perceptions and experiences of spiritual care from the perspective of PC professionals and identify their strategies to address spiritual care issues. Data were collected through semi-structured personal interviews and managed using WebQDA software (Universidade de Aveiro, Aveiro, Portugal). All data were analyzed using thematic content analysis, as recommended by Clark and Braun. The study included 15 palliative care professionals with a mean age of 38.51 [SD = 5.71] years. Most participants identified as lacking specific training in spiritual care. Thematic analysis spawned three main themes: (1) spiritual care as key to palliative care, (2) floating between “shadows” and “light” in providing spiritual care, and (3) strategies for competent and spiritual-centered care. Spiritual care was considered challenging by its very nature and given the individual, relational, and organizational constraints lived by professionals working in palliative care. With support from healthcare institutions, spiritual care can and should become a defining feature of the type, nature, and quality of palliative care provision. Care providers should be sensitive to spiritual needs and highly skilled and capable of an in-the-moment approach to respond to these needs. Further research on educating and training in spiritual care competence is a priority.

Funder

FCT—Fundação para a Ciência e a Tecnologia

Publisher

MDPI AG

Reference96 articles.

1. National Consensus Project Clinical Practice Guidelines for Quality Palliative Care Guidelines, 4th Edition;Ferrell;J. Palliat. Med.,2018

2. Improving the quality of spiritual care as a dimension of palliative care: The report of the Consensus Conference;Puchalski;J. Palliat. Med.,2009

3. ‘Total pain’, disciplinary power and the body in the work of Cicely Saunders, 1958–1967;Clark;Soc Sci Med.,1999

4. World Health Organization (2023, December 10). WHO Definition of Palliative Care. Available online: http://www.who.int/cancer/palliative/definition/en/.

5. El acompañamiento espiritual en cuidados paliativos;Benito;Psicooncología,2016

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