Special Issue: Psychosocial Considerations for Children and Adolescents Living with a Rare Disease-Reference-Cited by-同舟云学术

Special Issue: Psychosocial Considerations for Children and Adolescents Living with a Rare Disease

Published:2022-07-21 Issue:7 Volume:9 Page:1099
ISSN:2227-9067
Container-title:Children
language:en
Short-container-title:Children

Author:

Lyon Maureen E.^ORCID,Wiener Lori^ORCID

Abstract

This Special Issue of the journal Children constitutes an opportune moment to reflect on the psychosocial needs of children living with rare diseases and of their families [...]

Funder

NINR/NIH Award

Publisher

MDPI AG

Subject

Pediatrics, Perinatology and Child Health

Link

https://www.mdpi.com/2227-9067/9/7/1099/pdf

Reference13 articles.

1. Psychosocial Considerations for the Child with Rare Disease: A Review with Recommendations and Calls to Action

2. Unmet Needs of Parents of Children with Urea Cycle Disorders

3. Psychosocial Characteristics and Experiences in Patients with Multiple Endocrine Neoplasia Type 2 (MEN2) and Medullary Thyroid Carcinoma (MTC)

4. Psychosocial Difficulties in Preschool-Age Children with Beckwith–Wiedemann Syndrome: An Exploratory Study

5. Gender Differences in Caring for Children with Genetic or Rare Diseases: A Mixed-Methods Study

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1. Barriers to and Facilitators of Providing Care for Adolescents Suffering from Rare Diseases: A Mixed Systematic Review;Pediatric Reports;2023-08-09

2. NCI intramural program approach to rare tumors: Natural history study of rare solid tumors in children and adults: A longitudinal, comprehensive data and biospecimen collection protocol;Pediatric Blood & Cancer;2023-06-21