NCI intramural program approach to rare tumors: Natural history study of rare solid tumors in children and adults: A longitudinal, comprehensive data and biospecimen collection protocol-Reference-Cited by-同舟云学术

NCI intramural program approach to rare tumors: Natural history study of rare solid tumors in children and adults: A longitudinal, comprehensive data and biospecimen collection protocol

Published:2023-06-21 Issue:9 Volume:70 Page:
ISSN:1545-5009
Container-title:Pediatric Blood & Cancer
language:en
Short-container-title:Pediatric Blood & Cancer

Author:

Wedekind Mary Frances¹,Reilly Karlyne M.¹,Rivero Jaydira Del²,Lockridge Robin³,Allen Taryn³,Raygada Margarita¹,Bernstein Donna¹,Thomas Barbara J.¹,Vivelo Christina¹,Levine Jason⁴,Shonkoev Nurlan⁴,Aldape Kenneth⁵,Glod John¹,Sandler Abby B.¹,Widemann Brigitte C.¹

Affiliation:

1. Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute National Institutes of Health Bethesda Maryland USA

2. Developmental Therapeutics Branch, Center for Cancer Research National Cancer Institute, National Institutes of Health Bethesda Maryland USA

3. Clinical Research Directorate (CRD) Frederick National Laboratory for Cancer Research Frederick Maryland USA

4. Office of Information Technology, Center for Cancer Research National Cancer Institute, National Institutes of Health Bethesda Maryland USA

5. Laboratory of Pathology, Center for Cancer Research National Cancer Institute National Institutes of Health Bethesda Maryland USA

Abstract

AbstractRare tumors across the world are lacking adequate knowledge, resources, and community. Through partnership with patients, advocacy organizations, researchers, and clinicians, we have developed a comprehensive, longitudinal, prospective, and retrospective natural history protocol to collect, analyze, and share data on patients with rare tumors. A strong collaborative effort is vital to ensure success of enrollment, patient engagement, data collection, and analysis to ultimately develop clinical trials to improve outcomes for patients with rare cancers.

Funder

Cancer Moonshot

Publisher

Wiley

Subject

Oncology,Hematology,Pediatrics, Perinatology and Child Health

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/pbc.30495

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