Author:
Alnahdi Ghaleb H.,Alwadei Arwa,Woltran Flora,Schwab Susanne
Abstract
The lack of quality of life is a key issue for families with children with an intellectual disability. While the quality of life for people with disabilities has previously been researched as an individual variable, this has now shifted to include family members. The purpose of this study was to conduct a review of the studies measuring the quality of life of families with an intellectually disabled member, in order to identify the most commonly used scales and their psychometric properties. Method: Data were collected from six databases (ERIC, Web of Science, Scopus, CINAHL, MedLine, and Google Scholar), and this search yielded 3948 studies. One hundred and twenty studies that met the inclusion criteria were included in this study. Results: Nine scales were used in the last years to measure the quality of life for families with individuals with an intellectual disability. The Beach Center scale was the most common scale, followed by the Family Quality of Life Survey and the World Health Organization’s quality of life assessment (WHOQoL-BREF). The results showed that the included studies in the review lack the consideration of a broader population representing the different types of cultures with different socioeconomic backgrounds. Key aspects used to assess the FQoL are environmental factors (proximal and distal factors), as well as economic factors. Conclusion: Although the operationalization of the FQoL often incudes several subthemes, a general agreement regarding which domains of the FQoL need to be included in the measurements, and these do not exist right now. Moreover, multidimensional scales are still rare.
Funder
Deanship of Scientific Research at Prince Sattam Bin Abdulaziz University
Subject
Health, Toxicology and Mutagenesis,Public Health, Environmental and Occupational Health
Reference72 articles.
1. Autism Spectrum Disorders: Family Demographics, Parental Stress, and Family Quality of Life;J. Policy Pract. Intellect. Disabil.,2018
2. The 40th anniversary of deinstitutionalization in the United States: Decreasing state institutional populations, 1967-2007;Intellect. Dev. Disabil.,2008
3. Turnbull, A., Brown, I., and Turnbull, H.R. (2004). Families and People with Mental Retardation and Quality of Life: International Perspectives, American Association on Mental Retardation.
4. Conducting research with individuals who have intellectual disabilities: Ethical and practical implications for qualitative research;J. Dev. Disabil.,2013
5. Family quality of life of Australian families with a member with an intellectual/developmental disability;J. Intellect. Disabil. Res.,2012
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